Didactic Interactions

• Webinar: The effect of lived experience on a rehabilitation engineering researcher

  April 11, 2024 12 p.m. EST

  By Dr. James Sulzer, Staff Scientist at MetroHealth Medical Center and Associate Professor of Physical Medicine and Rehabilitation at Case Western Reserve University in Cleveland, Ohio. Dr. Sulzer has been a rehabilitation engineering researcher for the last two decades developing robotic gait exoskeletons, creating new methods of fMRI-based neurofeedback, and using wearable sensing to evaluate therapy. A few years ago, his young daughter sustained a severe traumatic brain injury, leaving her with substantial cognitive and motor impairments, and reconfiguring Dr. Sulzer’s life and career. He will share the insights he has gained through this experience in his talk. Dr. Sulzer is a member of the Board of Directors of RePlay for Kids, a philanthropic adaptive toy organization, and a member of the United Cerebral Palsy National Research Council.

Watch the video

• Webinar: Cerebral Palsy Awareness Day: How Parents Make a Difference

  March 25, 2024. 12 p.m. EDT

  By Kim Hindery and Mara Yale, Ph.D.

  • How parents make a difference for their own child

  • How parents make a difference for other children like theirs, finding community, advocacy groups, opportunities via volunteering and paid work

  • How parents make a difference through working with other parents, researchers, clinicians

  Kim Hindery serves as the Program Manager at the Child Neurology Foundation, where she leads the Family Support Program and facilitates education for clinicians and families. She also contributes to the FDA’s Patient Engagement Collaborative, advocating for the patient perspective in regulatory processes. As co-chair of the I-ACQUIRE parent council, Kim collaborates with other parents to ensure that clinical trials are accessible and friendly to both parents and patients. Previously, she worked for 16 years as an intervention specialist in public schools, supporting children with diverse needs. Kim currently resides near Cincinnati, Ohio, with her husband, Greg, and their two children, one of whom has cerebral palsy.

  Mara Yale, Ph.D., leads Pediatric Stroke and Brain Injury Education and Outreach at Massachusetts General Hospital, reaching an international audience. She co-chairs the I-ACQUIRE Parent Council. Mara brings scientific inquiry and collaboration to her work based on prior careers in geophysics and software engineering. Mara is a Guild Certified Feldenkrais Practitioner, Somatic Experiencing Practitioner, has trained in Hand-in-Hand Parenting, holds a Ph.D. in geophysics, and played Division I ice hockey. She lives near Boston with her two children, one of whom had a perinatal stroke.

  Watch the video

• Webinar: From spontaneous exploration to motor control: How self-generated experience drives development of sensorimotor behavior and brain function

By Claudio Ferre, Ph.D, Aug. 3, 2023, 12 p.m. ET

Watch the video

• Webinar: Learn the Signs. Act Early: Updates and Implications for Pediatric Rehabilitation Professionals

By: Kari Kretch PT, DPT, PhD,

July 7th 12:00-1:00 EST

Watch the video

• Webinar: Quantifying Health Equity in Clinical Research,

  March 23, 2023, 12 p.m. EST, by Jonathan Jackson, Executive Director of the Community Access, Recruitment, and Engagement (CARE) Research Center at Massachusetts General Hospital and Harvard Medical School. Watch the video.

  • In recent years, it has become clear that clinical research participation is more accessible to some populations relative to others. The proposed lecture will provide the audience with an overview of inequities and barriers for clinical trial recruitment in pediatric rehabilitation research. The presentation will describe current research in recruitment and inclusion science, including a testable framework for future research, as well as what investigators and study teams can do to minimize barriers to research recruitment

• • Relevant questions:

1. 1. What kinds of challenges have you faced in recruiting representative study populations
   2. What have you tried to do to resolve difficulties, and with what result?
   3. What kind of information, resources, or follow-up would be most immediately helpful during Jonathan’s presentation?

• Webinar: Dosing for Pediatric Rehabilitation Session 1, by Jill C. Heathcock, MPT, Ph.D., Amy F. Bailes, PT, Ph.D., Mary E. Ganotti, PT, Ph.D., and Noelle G. Moreau, PT, Ph.D.

Clinical Trial and Health Service Approaches, March 9, 12 – 1 p.m. EST. Watch the video.

• • A path for model dosing (Dr. Gonnotti)
  • Dosing in a clinical trial (Dr. Moreau)
  • Dosing using a health services approach (Dr. Bailes)
  • Questions (Dr. Gannotti)

• Webinar: Dosing for Pediatric Rehabilitation Session 2, by Jill C. Heathcock, MPT, Ph.D., Amy F. Bailes, PT, Ph.D., Mary E. Ganotti, PT, Ph.D., and Noelle G. Moreau, PT, Ph.D.

Stakeholder and Pragmatic Trial Approaches, April 4, 12 – 1 p.m. EST. Watch the video.

• • Using Research Summits with comprehensive stakeholder engagement to promote dosing research (Dr. Gannotti)
  • Dosing in clinical trials from patient perspective (Dr. Moreau)
  • Dosing in a pragmatic trial (Dr. Heathcock)
  • Questions (Dr. Gannotti)

• National Advisory Board on Medical Rehabilitation Research Meeting – December 2022 Videocast
  

• Day 1 – Monday: Watch video
  
• Day 2 – Tuesday: Watch video
  
• View agenda to skip to specific talks: Agenda

• Symposium: Pediatric Rehabilitation Trials: Expect the Unexpected, Seek Maximal Benefits, Measure What Matters Most, 76th Annual Meeting of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM). Sharon Landesman Ramey, Stephanie DeLuca, Craig Ramey (Fralin Biomedical Research Institute, Virginia Tech); Richard Stevenson, Mark Conaway (The University of Virginia); Amy Darragh, Jill Heathcock, Warren Lo (The Ohio State University and Nationwide Children’s Hospital); Jennifer Murray, Mara Yale (I-ACQUIRE Parent Council).
• Webinar: Aberrant Sensorimotor Processing in Children with Hemiplegic Cerebral Palsy: Findings from MEG EEG Brain Imaging, Feb. 23, 2022, 1 p.m. EST, by Yanlong Song, Ph.D., Postdoctoral Research Fellow at the Jane and John Justin Neurosciences Center, Cook Children’s Health Care System. Watch the Video
• Webinar: On Time Mobility for Infants and Toddlers with Disabilities: Perceptions, Use Patterns, and Developmental Outcomes Following a Powered Mobility Trial, Feb. 16, 2022, 1 p.m. EST, by Heather A. Feldner, PT, Ph.D., PCS; Lisa Kenyon, PT, DPT, Ph.D., PCS; and Sam Logan, Ph.D. Watch the Video
• Webinar: Visuo-Motor Integration Assessment Through Immersive Virtual Reality in a Busy Cerebral Palsy Clinic Setting: Feasability, Benefits, and Challenges, Feb. 9, 2022, 1 p.m. EST, by Danielle Levac, PT, Ph.D. Watch the Video
• Webinar: Diversity, Equity, & Inclusion in Pediatric Rehabilitation Trials: Why and How Can I Make Them Happen?, Jan. 28, 2022, 10 a.m. EST, by Warren Lo, M.D. Dr. Lo leads the C-Progress Mentored Collaborative Opportunities core. Dr. Lo is a clinical professor in pediatrics and neurology at the Ohio State University and Nationwide Children’s Hospital in Columbus, Ohio. He works in the area of pediatric stroke, particularly in stroke outcomes and improving outcomes in children. He serves as a multiple PI with Dr. Landesman Ramey on the I-ACQUIRE trial of high intensity motor rehabilitation in infants who have suffered stroke. Watch the Video
• STRIVE for Change Workshop Series: Societal Influences and Health Disparities During Childhood, Aug. 25. (Other workshops scheduled for Sept. 15 and Oct. 6)
• National Advisory Board on Medical Rehabilitation Research, May 2021, video available on demand
• MR3 Network Precision Rehabilitation Scientific Retreat, June 29-30, 2021, archived presentations
• Eunice Kennedy Shriver National Institute of Child Health and Development Events